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Jolie Rose Lombardo performing at ADC | IBC prior to her diagnosis. Richard Finkelstein, Courtesy Stephanie Lombardo

It was mid-January when 15-year-old Jolie Rose Lombardo first noticed the leg pain. A scholarship student at the John Cranko Schule in Stuttgart, Germany, the Florida native felt fine dancing through full days of classes and completing her regular school schedule. It was only at night that what appeared to be sciatic pain would shoot down her right leg when she tried to lie down, making resting difficult. After a few sleepless nights, spent mostly standing up, she went to the doctor for an X-ray, followed by an MRI.

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